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#1942892 - 05/16/08 07:04 AM Someone let me off of this rollercoaster!
RABid
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Registered: 11/01/01
Posts: 7664

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also titled
Why you have not seen much of me lately.
also titled
I need to vent and this place is good as any. \:P

About 4 months ago my dad went into the hospital for what should have been simple treatment. He had an infection in his hip and the blood was too thin. He takes Coumadin for his heart and it always needs adjusting. My dad is on peritoneal dialysis and the closest hospital that supports that type of dialysis is 90 miles away. This time he ended up on a floor that likes to medicate patients to keep them quiet. In three weeks he went from feeling bad to near death and could not stand. We pulled him out and put him in a local hospital. They immediately found that the over-medication was causing him to aspirate and that resulted in pneumonia in both lungs. Not good for someone that is 82 years old. That hospital does not support peritoneal dial so my sister and I had to go do it for him every day. It takes about 9 hours from set up to finish and one of us had to be there the entire time. Before he got sick he did his own dialysis over night letting the machine run as he sleeps. It took 11 and ½ weeks for him to recover enough to go home. By then he had lost so much mussel that he is too weak to stand. He is recovering and learning to walk again. We have three people hired to stay around the clock on week days but I have to go every night to start his dialysis and I stay with him all weekend. He lives 35 miles from me.

My sister lives two miles away from my dad. I thought that her and my brother-in-law would be taking week about with me in the care situation. The week my dad was scheduled to get out of the hospital my brother-in-law committed suicide. It was really unexpected and we can only guess that he thought he had cancer again and could not deal with it. Of course she now questions the time she had to spend with my dad during the 14 week hospital stay as being a reason she did not notice a problem with her husband. I’m trying to watch after her as best as I can while still being caregiver for my dad.

Tuesday night I got to spend my first night at home, in my own bed, for the first time since my dad got home from the hospital. It is nice to at least have someone to watch him at night during the week. Wednesday night my sister called me at 3:30 AM to let me know that my mother was on the way to the hospital. She has congestive heart failure due to not taking her medicines correctly. My mother tries to manage her own medicines and being in the early stages of Alzheimer’s does not help. The doctor says she should be out of the hospital Sunday or Monday.

At least work has been very supportive. Before this started I had built up 2 weeks of vacation and 300+ hours of sick leave. A good chunk of that is now gone. Even so, I am thinking about taking a half day off this evening (Friday) for some “me” time before heading to my parents’ house for the weekend. Once there my dad will be calling for me at least once an hour day and night. “I need to pee.” “What time is it?” “Turn that TV off.” And the most aggravating, “I just wanted to make sure you are still here.”

Thanks for letting me vent.
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#1942899 - 05/16/08 07:16 AM Re: Someone let me off of this rollercoaster! [Re: RABid]
forceman
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Registered: 03/01/04
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Loc: Metro-Detroit, Michigan

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Elderly parents--sigh, I know all about that.... the family suicide thing as well..

Well, you are there for your family and that is a very good thing.

My thoughts are with you.
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#1942900 - 05/16/08 07:18 AM Re: Someone let me off of this rollercoaster! [Re: forceman]
gangsu
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Wow. That's a lot of stress! The killer is "I just wanted to make sure you are still here." Yikes. Is it ok to laugh?!?! Hang in there, Rabid.
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#1942903 - 05/16/08 07:23 AM Re: Someone let me off of this rollercoaster! [Re: gangsu]
MusicWorkz
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Registered: 04/20/01
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Loc: Philadelphia,PA,UNITED STATES

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Rabid, sorry to hear you are going thru a rough spot.

You've done the best you canin quite difficult times, so let yourself off the hook, vent if you have to among us Forumites and take that "me" time...your sanity is critical to you making it thru all of this...
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#1942920 - 05/16/08 07:55 AM Re: Someone let me off of this rollercoaster! [Re: gangsu]
RABid
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Registered: 11/01/01
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 Quote:
The killer is "I just wanted to make sure you are still here." Yikes. Is it ok to laugh?!?!


About all you can do is laugh. I never thought runnig to the store for groceries would feel like a vacation. \:\)

I think I will take the evening off. This evening I am going to take a workstation and a set of speakers with me. I canont use headphones while there because I might miss one of those important calls for help.

Maybe I need to change things around. I have a baby monitor set up so I can hear him while I am in the family room or kitchen. Maybe I need to switch it around and set it up so that he can hear me. \:D
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#1942927 - 05/16/08 08:02 AM Re: Someone let me off of this rollercoaster! [Re: RABid]
forceman
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Registered: 03/01/04
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Loc: Metro-Detroit, Michigan

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Consider outside care/assistance as well. I don't know your parents financial situation (something you had better wrap your mind around now..) but see if there is a way you can get outside help. Consider contacting your local council on aging or something similar--they can give you some great advice or at least point you to some alternatives..
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#1942928 - 05/16/08 08:05 AM Re: Someone let me off of this rollercoaster! [Re: MusicWorkz]
Mr. Nightime
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Registered: 03/03/05
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Loc: Melbourne, FL

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Rabid
Hang in there. I can understand how tough it is.

My dad's health has been going steadily downhill since my mom died 3 years ago. He's on dialysis 3 days a week, is in and out of the hospital with various problems, had his leg amputated due to diabetes.

My biggest issue is that he is having to be cared for by my sister. She's a saint, never complaining about it, talking care of everything. But, it can take days before I even find out about his latest escapade.

My dad lives with my sister, where I live a 2-day drive away. His latest issue where he had to be airlifted from SE Arkansas to Shreveport LA was especially tough on me, because I couldn't be there.

Just keep being the good son that you are, and cherish the time you do have with him. I know I cherish even just the phone calls.
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#1942930 - 05/16/08 08:07 AM Re: Someone let me off of this rollercoaster! [Re: RABid]
BluesKeys
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Rabid, I know how stressful it can be with elderly parents. It is tough when they are gone too. My heart goes out to you and my prayers are with your parents.
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#1942937 - 05/16/08 08:18 AM Re: Someone let me off of this rollercoaster! [Re: RABid]
Joe Muscara
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Registered: 02/21/05
Posts: 2186
Loc: Houston, TX

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 Originally Posted By: RABid
About all you can do is laugh. I never thought runnig to the store for groceries would feel like a vacation. \:\)
LOL

And, that's the spirit! Sorry to hear you're going through all that. "Normal" life (if there is such a thing) can be stressful enough, now you practically have three people to take care of or at least watch over. You are wise to realize you need the "me" time. Feel free to vent here all you want.

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#1942940 - 05/16/08 08:24 AM Re: Someone let me off of this rollercoaster! [Re: BluesKeys]
Mark Zeger
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Registered: 03/21/01
Posts: 3929
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If no one expresses this:

You're a good son and brother, and you are bringing great comfort to your family.

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#1942957 - 05/16/08 08:51 AM Re: Someone let me off of this rollercoaster! [Re: Mark Zeger]
linwood
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RABid, you're a good man. Sorry you're going through all this, but glad you're family has someone like you there for them. Get rest when you can.
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#1942993 - 05/16/08 09:40 AM Re: Someone let me off of this rollercoaster! [Re: linwood]
ITGITC?
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RABid - lots of us here are in the same situation. Some of us are raising kids and dealing with that, while at the same time trying to keep our parents comfortable as they age.

Let me tell you that it's very much OK to vent here. You're no newbie to this KC family and I feel certain that any of us are happy to listen to what you have to say.

Try to stay cool. It's not fun. It's not easy.

But when you need to hop on the forum and chat, that's not a problem.

Or hell, you can do what I do and just jump into any ol' thread and post a picture or two of BEER...

It cheers ME up. \:D

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#1942994 - 05/16/08 09:41 AM Re: Someone let me off of this rollercoaster! [Re: linwood]
ITGITC?
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Double post.

(I never knew that I'm a stut-stut-stutterrerr.)
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#1943011 - 05/16/08 10:02 AM Re: Someone let me off of this rollercoaster! [Re: ITGITC?]
Mr. Nightime
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Registered: 03/03/05
Posts: 2179
Loc: Melbourne, FL

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Vent all you need. You're among friends.
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#1943035 - 05/16/08 10:59 AM Re: Someone let me off of this rollercoaster! [Re: Mr. Nightime]
Joe P
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Registered: 01/24/05
Posts: 944
Loc: Long Valley, NJ

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RABid,
Tough situation. Hang in there. It is good that you are involved in his care, and taking him off that floor probably saved his life. Stay involved. Older folks have a different way of dealing with doctors - they do what the doctors tell them no questions asked. But you can't trust the medical industry anymore. Not one bit. Stay involved and good luck.
Regards,
Joe

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#1943072 - 05/16/08 12:11 PM Re: Someone let me off of this rollercoaster! [Re: Mark Zeger]
stepay
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Registered: 01/30/06
Posts: 1810
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Man Rabid, so sorry to hear all that. My parents are just in their late 60s, so I've not dealt with anything like that first hand yet, though I probably will have to sometime down the line. Good wishes to you and your parents and your sister.
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#1943160 - 05/16/08 03:39 PM Re: Someone let me off of this rollercoaster! [Re: stepay]
Tusker
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Registered: 08/02/00
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Hey Robert,

I'm sorry. Rooting for you.

Jerry

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#1943162 - 05/16/08 03:54 PM Re: Someone let me off of this rollercoaster! [Re: Tusker]
SpaceNorman
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Registered: 12/07/06
Posts: 383
Loc: Michigan

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Sorry to hear about your situation Rabid. In situations like that, you're stuck playing out the hand you're dealt. I have alot of empathy for what you're going through - I was a long term care provider for both my mother-in-law (Alzheimer's) and my father (multi-infarct dementia).

The only advise that I can give you is that your challenge is to create a solution that comes closest to meeting EVERYBODY's needs - including your own. As a caregiver - it's all too easy to focus solely on your loved one - and kill yourself in the process. Being a long term caregiver is taxing (my MIL lived with me for 7 years...) - insist that others help, and realize that there will likely be things you won't be able to do for your Dad.

Good luck and hang tough.
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#1943189 - 05/16/08 04:55 PM Re: Someone let me off of this rollercoaster! [Re: SpaceNorman]
Keybass
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Registered: 06/23/03
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Loc: Sacramento

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Godbless you my friend, you're a good son. My heart goes out to your family at this time.

Take time for yourself, maybe keeping a journal will help with the stress.

God Bless
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#1943209 - 05/16/08 06:55 PM Re: Someone let me off of this rollercoaster! [Re: Keybass]
Geoff Grace
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Registered: 08/13/02
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Robert, I'm so sorry to hear what you're going through.

Take care, my friend!

Best,

Geoff
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#1943245 - 05/16/08 09:26 PM Re: Someone let me off of this rollercoaster! [Re: Geoff Grace]
SK
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Registered: 12/24/06
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Loc: Va.

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My mom had Alzheimer's too (in her late 60's), and for a while I was caregiver. The main advice I can give anyone in that situation is do your best, get help from other family members, but also don't try to do more than you humanly can.

You don't want it to get to the point where it takes more of a toll on you than the help you're able to give. At that point, it's better to realize you've done your best and let objective professionals (the very best you can find) handle things from there. That was the hardest thing for me to accept. I wish you strength and the best possible outcome.

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#1943309 - 05/17/08 03:48 AM Re: Someone let me off of this rollercoaster! [Re: SK]
marino
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Registered: 10/20/00
Posts: 4521
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Robert - I really can understand your situation, and it's not easy at all. I myself went venting on the forum a while ago. My dad, now 92, has had Alzheimer for 12 years now, and he's presently in a vegetative-like state... my mother wanted to keep him at home at all costs, but now she needs help too, she's losing memory and can't walk anymore. And they both still live at home. Guess who was called to deal with this whole mess?
More than half (quite a lot more) of my life in the last 10 years, not to speak of most of my money, has been spent dealing with parents' health. And yes, I had to deal with the loss of other loved ones at the same time, and the end of an important love affair. I haven't had a vacation in the last 5 years.

I have learned a couple of things:
- You can survive all this. It's not easy, but you can keep your sanity, work and even make music. But to do that,
- You need help. In Italy, Public Health helps a bit, but not a whole lot (like in France, for example). I had to pay someone to live in my parents' apartment permanently. (Not always the same person, obviously) Of course, I need to be there too, and very often. But it's an enormous part of the load that I had taken away from my shoulder, and it was the only way.
- An endless dose of love doesn't hurt. (It never does) \:\)

I'm sending you all the strenght I can.



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“I never changed being acoustic. I’m just using an electronic instrument. That doesn’t mean that it’s not acoustic." Josef Zawinul

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#1943311 - 05/17/08 03:58 AM Re: Someone let me off of this rollercoaster! [Re: marino]
Strategery
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Registered: 02/24/07
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YEah, both of my parents died of cancer 2 years apart.
It was sad to see them on their downward spiral but there's not much you can do but be there and do what you can.

Thank GOD for Hospice.
Those people are the best! \:\)

My parents died in their middle 70's.
How long will any of us here last, God only knows.
I've watched old and young die and those that you'd least expect.
Recently, I've had a couple of friends die of colon cancer and they were only in their early 50's.
Needless to say, the wife and I started getting our check ups as early detection is key on upping your percentage of recovery.

Is it ok to laugh?
You bet and even those afflicted will agree with you.
It's about all you have left. \:\)

All my thoughts and prayers are headed your way and hang in there, it does get better. \:\)

Randy
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#1943318 - 05/17/08 04:24 AM Re: Someone let me off of this rollercoaster! [Re: Strategery]
MidLifeCrisis
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Registered: 08/01/03
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Wow Robert, you are certainly under a ton of stress. My heart goes out to you. I know what kind of burder this puts on your life.

I am another one of the guys who has an elderly parent who has needed my care. My mother has congestive heart failure and has had a few strokes. The few times I have been close to losing her I pray for the opportunity to be able to take care of her again.

The only consolation you can take from this is that you are a great human being and you still get to share some moments with your dad. A lot of people would not devote this time to their parents. I feel bad for them since they obviously don't know what having the true love a family means. I could not even comprhend not doing everything I can to help my mother.

The ordeal and stress will end eventually. You will make it through it and you will have a sense of satisfaction knowing you did whatever it took to help your dad.

There are plenty here who can empathize with your situation so bitch away.
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#1943365 - 05/17/08 07:19 AM Re: Someone let me off of this rollercoaster! [Re: RABid]
SilverDragonSoun
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Registered: 04/08/05
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 Originally Posted By: RABid
also titled
Why you have not seen much of me lately.
also titled
I need to vent and this place is good as any. \:P

About 4 months ago my dad went into the hospital for what should have been simple treatment. He had an infection in his hip and the blood was too thin. He takes Coumadin for his heart and it always needs adjusting. My dad is on peritoneal dialysis and the closest hospital that supports that type of dialysis is 90 miles away. This time he ended up on a floor that likes to medicate patients to keep them quiet. In three weeks he went from feeling bad to near death and could not stand. We pulled him out and put him in a local hospital. They immediately found that the over-medication was causing him to aspirate and that resulted in pneumonia in both lungs. Not good for someone that is 82 years old. That hospital does not support peritoneal dial so my sister and I had to go do it for him every day. It takes about 9 hours from set up to finish and one of us had to be there the entire time. Before he got sick he did his own dialysis over night letting the machine run as he sleeps. It took 11 and ½ weeks for him to recover enough to go home. By then he had lost so much mussel that he is too weak to stand. He is recovering and learning to walk again. We have three people hired to stay around the clock on week days but I have to go every night to start his dialysis and I stay with him all weekend. He lives 35 miles from me.

My sister lives two miles away from my dad. I thought that her and my brother-in-law would be taking week about with me in the care situation. The week my dad was scheduled to get out of the hospital my brother-in-law committed suicide. It was really unexpected and we can only guess that he thought he had cancer again and could not deal with it. Of course she now questions the time she had to spend with my dad during the 14 week hospital stay as being a reason she did not notice a problem with her husband. I’m trying to watch after her as best as I can while still being caregiver for my dad.

Tuesday night I got to spend my first night at home, in my own bed, for the first time since my dad got home from the hospital. It is nice to at least have someone to watch him at night during the week. Wednesday night my sister called me at 3:30 AM to let me know that my mother was on the way to the hospital. She has congestive heart failure due to not taking her medicines correctly. My mother tries to manage her own medicines and being in the early stages of Alzheimer’s does not help. The doctor says she should be out of the hospital Sunday or Monday.

At least work has been very supportive. Before this started I had built up 2 weeks of vacation and 300+ hours of sick leave. A good chunk of that is now gone. Even so, I am thinking about taking a half day off this evening (Friday) for some “me” time before heading to my parents’ house for the weekend. Once there my dad will be calling for me at least once an hour day and night. “I need to pee.” “What time is it?” “Turn that TV off.” And the most aggravating, “I just wanted to make sure you are still here.”

Thanks for letting me vent.



Wow after reading that you should vent however much you need. I'm really sorry for all the unfortunate things that happened to you and your family. It's very sad and I will keep you in my thoughts and prayers.
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#1943374 - 05/17/08 07:49 AM Re: Someone let me off of this rollercoaster! [Re: SilverDragonSoun]
Edgar Summers
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Registered: 11/18/00
Posts: 282
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My prayers and best wishes for you.
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#1944258 - 05/19/08 08:17 AM Re: Someone let me off of this rollercoaster! [Re: Edgar Summers]
RABid
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Thanks guys. Sometimes it helps just to say something. Three cousins spent a lot of time at the hospital with my mom and with my sister this weekend so I only had to worry about my dad. Now I need to find some way to motivate my dad. I put him in a recliner in front of the window and he spends the entire time complaining and wanting to go back to bed.

Marino (and others), how do you get the creative spark back? I take a keyboard and my MacBookPro with Live installed when I go but I cannot get started. After a dozen calls of "Hey Bob" there is nothing left. I cannot relax and get into the music. I'm thinking that I need to chance my process. Any suggestions?
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#1944306 - 05/19/08 09:42 AM Re: Someone let me off of this rollercoaster! [Re: RABid]
SK
Platinum Member


Registered: 12/24/06
Posts: 1662
Loc: Va.

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 Originally Posted By: RABid
how do you get the creative spark back? I take a keyboard and my MacBookPro with Live installed when I go but I cannot get started. After a dozen calls of "Hey Bob" there is nothing left. I cannot relax and get into the music. I'm thinking that I need to chance my process. Any suggestions?

You probably don't need to change your "process" - unless you feel a need to, and then the best change would come from you anyway. In the meantime, thinking about music and listening may help.

Chances are it's the same as it was for me in that same situation - and that is a temporary and understandable form of depression. The fact that you CARE about it means the spark is there. Just because we can't always access it doesn't mean it goes away. You're just in an unresolved period of emotional limbo.

When something finally changes for the better or the worse, if not sooner, it will come back, and usually stronger than before. Often for me, the deepest type of motivation and musical inspiration occurs at either the happiest or the most difficult of times, when it seems like there's nowhere else to turn. Then music becomes your 'friend' again. So for you, it sounds like things are OK and as they should be for the time being.

Like director Alfred Hitchcock said "no one can take away your talent."



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#1944329 - 05/19/08 10:17 AM Re: Someone let me off of this rollercoaster! [Re: SilverDragonSoun]
Legatoboy
Platinum Member


Registered: 08/11/06
Posts: 1992
Loc: Huntington Sta., New York (LI)

content Online
Rabid man,

I feel for you, I just went through this with my 85 year old dad. He actually survived Sepsis due to a blocked and severely infected Gaul Bladder! It was, well lets say, INTENSE to say the least for the whole family! Thank God he survived and is with us!

My only brother and sibling was going through the worst work situation he has had in 4 years and was out of town for the heart of the whole ordeal. I had to take my mom to the hospital and pick her up at least 5 days/nights a week and deal with the diagnosis situations and all.

It's really part of life, there our parents! Hang in there, it can be rough!

lb


Edited by Legatoboy (05/19/08 10:37 AM)
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#1965339 - 07/02/08 08:01 AM Re: Someone let me off of this rollercoaster! [Re: RABid]
RABid
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Posts: 7664

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Well, the ride has come to an end. After two months at home something simple caused a big setback and I took my dad to the local emergency room, twice. Both times the doctors said nothing was wrong with him. The second time they agreed to admit him to the hospital but I had a hard time getting then to transfer him to a hospital with a nephrologist on staff. As soon as we moved to another hospital they diagnosed him with pneumonia and congestive heart failure. He spent one week in ICU and one week in a hospice ward. From out time spent together the past few months I was able to recognize his wants and needs even during times that he could not communicate. That came in handy the past two weeks. I knew that his biggest want was for me to spend the night in a recliner next to his bed, so I did every night he was in the hospice ward. It was two weeks of hell but it was worth it. We buried my dad yesterday. He died holding my hand, and knowing that I was there every minute that the staff would allow. I don’t know anything I could have given him that would have meant more to either of us.
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